14 October, 2008

Consumptive Diaries Part 24: Screaming Bureaucracy

7:30pm; Friday night; at home

My phone rings & it's the space cadet lady from the Public Health Centre.
Now, i am glad about the financial support they are giving me towards my meds (25% of cost), but i wish they wouldn't feel obliged to make pointless phone calls to me.
This is a rough transcript of call:

Me: Hello?
S: Hello, this is Ms S from Nakahara Public Health Office. Is it OK to talk now?
Me: Yes.
S: We got a call from the hospital that you are off your medication.
Me: Yes, it was affecting my liver.
S: I see. Did you lose your appetite?
Me: Not really. I was just really really tired.
S: So, you lost your appetite?
Me: NO! I was just constantly tired. It was really hard to do everything i had to do, and i had no energy.
S: Oh. Could you take your medication everyday?
Me: Yes.
S: You didn't forget to take it?
Me: NO!
S: I see. When are you going back to the hospital?
Me: 21st October.
S: I see. And what medication will you be taking?
Me: I don't know; I haven't been to the hospital yet.
S: I see. Well, if your medication changes, you'll have to fill out the paperwork again.
Me: Again?!
S: Yes. Now, we're covering your medication, but only that medication. If your medication changes, we'll have to change the documentation.
Me: Oh...
S: The doctor should do all the paperwork & you just have to sign it. AND you don't even have to come to the Public Health Centre!
Me: Wow! How wonderful!
S: Do you have any other concerns?
Me: Yes. I am worried about the treatment. I am also concerned about how much of an effect this is having on my daily life. Also, i worried about the future; when will this end? I thought everything would be finished by the end of January, but now it looks like it'll go on for longer. And what happens if the next drug also hates my liver? What happens then?!
S: ... Oh. Well, talk to your doctor next time you meet him. And I will call again after your next visit. Thank you. Goodbye.
Me: ...

Am so fed up of people asking me how i feel & how are things because:
A) They don't really care about my response or
B) I end up spouting out a whole diatribe of frustration & stress, which makes my feel like a crazy woman.

Basically, i am tired, worried and really really want this all to be over. I am *so* done with TB.

And on a completely different note: 6 sleeps until The German leaves.


Sandi said...

I expect you to send a lot of email my way after those 6 sleeps...seriously.

arumanda said...

i'm also here